In order for therapies to make the journey from the lab bench to patient hands, a joint focus on public policy and research is essential. Policy decisions impact many aspects of life with Parkinson's disease (PD), including the scope of publicly funded PD research, the regulation of treatments, and the quality and availability of patient care.
The Michael J. Fox Foundation advocates for government policies that accelerate the development of Parkinson's therapies and increase quality of life for patients, families and care partners. We pursue these goals in several ways: an annual forum in Washington, D.C. where PD community members and legislators unite to discuss pressing issues; close collaboration with the federal agencies and lawmakers that further scientific progress and help individuals access care; and coalition work with other research- and health-based organizations. We also rely on a national grassroots advocacy network that calls, emails and meets with members of Congress year round. Learn how you can join these efforts and take action today.
Our public policy work spans three priority areas:
Further Parkinson's Disease Research
Basic Parkinson's research is the backbone of drug development, and the federal government funds much of this. Each year, Congress creates a budget and decides how much money to allocate to the programs and agencies that support medical research. Robust funding and adequate scientific resources ensure better treatments and cures can continue to move forward. READ MORE.
Support Drug Development and Approvals
As new medications and devices reach the end of the clinical trials process, they must request Food and Drug Administration approval. It's crucial that the agency understands patients' needs as it makes decisions about potentially life-changing therapies. Additionally, amplifying patient priorities helps drug makers and government regulators address gaps in the PD treatment strategy. READ MORE.
Safeguard Access to Care and Support
Access to health services and treatments is an important part of a patient's care. For those living with Parkinson's disease today, these factors directly impact symptom management and quality of life. Resources such as government benefits, comprehensive insurance coverage, therapy services and emerging technologies can help improve well-being. READ MORE.
MJFF welcomes input from industry on public policy issues affecting the Parkinson's community. While MJFF may use this information to help advance policy initiatives that benefit patients, families and caregivers, the Foundation does not accept industry funding for public policy activities. Any proposed sponsorship opportunities that create a perceived conflict of interest or imply MJFF backing of one industry group over another are not allowed.
ADVOCATE FOR THE PARKINSONíS COMMUNITY
Contact your members of Congress on pressing policy issues and explore advocacy resources, including a comprehensive toolkit.
Congressional Caucus on Parkinson's Disease
This Caucus increases awareness on Capitol Hill of the policy needs of the Parkinsonís community.
Policy Advisory Councils
Parkinsonís community organizations and government experts contribute to policy work through two advisory councils.
History of Parkinson's Advocacy
Learn more about the origin of public policy programming at The Michael J. Fox Foundation.